We drove up to Red Deer for our two day developmental diagnostic clinic. we spent hours answering questions, feeling at times like I didn’t know my daughter at all because I couldn’t answer one or two, but then again I am pregnant and have no brain anymore. I feel like Melia didn’t show them the real her. She was so tired from not napping yet she preformed like a champion. She didn’t try to bite or scratch or scream her lungs out. All I can say is I’m glad these guys know what they are doing and can see past the little show she has put on for them. They tell us she is baffling them. what? Because of some things she does or doesn’t do she should be labeled Autistic. Yet, because of other things she does or doesn’t do they can’t and won’t label her that because she’s not.
So she's not autistic, now what? you would think that finding out she didn't have autism would bring me comfort, but in a strange way it doesn’t.
At least Autism would explain a lot more than the Sensory Regulatory Disorder with Hypersensitive/cautious- fearful and sensory seeking.... I cant even remember the long winded diagnosis right now. Plus add in her severe cognitive delay, which on paper makes her look like she should be drooling while flipping through a phonebook all day long. But in reality she really is a very smart girl.
And then, the doctors have no clue on her regression of speech. Great! So that is still at square one, and that is exactly the thing that got me worried in the first place- and the thing that frightens and frustrates me most, and I know it frustrates Melia too! At this point I ask her pediatrician about brain scans and tests that we could see if there is anything in her brain. I almost pray that there is a small, non-cancerous removable tumor that when they do a very simple surgery she will go back to where she was before. But part of me knows that would be too easy.
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